A human space to share experiences and connect with other people who understand — patients, families and caregivers facing glioblastoma together.
Patients · Families · Caregivers · Professionals
Behind every diagnosis there is a person — and behind every person, a network that can hold them up.
The glioblastoma diagnosis changes everything, overnight. You don't have to carry it in silence: here you'll find people who have been where you are, and who are willing to walk beside you.
Lived experience, in first person. Sharing it gives visibility to what so many families go through — and reminds whoever reads it that they are not alone.
Personal experiences, not medical advice. What works for one person does not apply to another: talk to your medical team before changing anything.
Information matters — but so does feeling part of something. These are the ways to connect with other people living the same.
Patients, families and caregivers who accompany one another. No one understands like someone who has been there.
I want to connect →Give visibility to your experience. It can be the message someone else needs to read today.
Tell us →Beyond our own network, these organisations and groups can accompany you too. They are external to AEGBM and offer peer support — never medical advice.